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Adventures In Alzheimer’s and Parkinson’s / Chapter 2: The QEEG 5/28/22

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Comments

  • edited May 2022

    Thank you for the love @oddSTAR. My feeling in posting was that I’d be reaching a lot of people who are affected by these disease. The Parkinson’s improvements with the device are Aston. The Chazot video above has before and after films of a Parkinson’s patient.

    Sorry for your loss @craftycurate. Dementia is a disease invented by an absurdist playwright. Unlike anything else… the contradictions and paradoxes experienced by the victims and caregivers. Cynthia uses this word “fizzles” to describe her experience. She’ll have a thought and it just “fizzles out”. So sad and heartbreaking.

    Wow @qryss, life presents us with some wicked ironies. A huge loss, but a rescue, for sure.

    Thanks @Proppa. Yeah, I’m very stubborn. I keep looking for stuff until it’s manifested (well, sometimes).
    I once lost a leather jacket in a rented truck. Stuffed behind the driver’s seat. I went to the rental place but the truck was gone. I got the license plate and everywhere I went in Manhattan, for a month, I looked at every yellow Penske van I came across. Then, I was in a remotish part of upper Manhattan and saw a yellow van in a parking lot. It had the license plate. I asked the attendant if I could look. Sure enough, it was just where I had left it, A miracle! Here’s the irony…. When I tried it on it no longer fit. It hadn’t shrunk of course. I had been too attached to really see it. Quite a life lesson, but I still look for answers to sometimes unanswerable problems.

    Well, I sure hope this works @Bob. Not only for us, but for others, like yourself and your mom, who might have a shot at improvement with an off the grid treatment.

  • This Lady talks about coconut oil.

    There was another lady also on a Ted talk, and also some kind of a physician. Who healed herself with food. She talked about kale and liver delivering building blocks for the brain.
    Also no carbs.

  • The Stubbornly Grand Manhattan Penske Van Adventure. I imagine it an animated short in the modern style. A metaphor for life and, eventually, acceptance :).

    As another dead man once said (and often): May your God go with you.

  • edited May 2022

    Chapter 2: Yesterday, C and I travelled south to get a Qunatitative EEG, or brain mapping. This specialized reading of brain activity registers brainwaves from 19 locations.

    Of particular interest are alpha waves which, when elevated in amplitude indicate dementia. So this establishes a baseline and ongoing diagnostic tool going forward. The technician placed a futuristic spidery, apparatus on Cs head (the device costs $50k with software!).

    Cynthia was anxious and the brainwaves showed it! Chaotic and dense. As she relaxed the readout became calmer and more organized, but, the alpha waves were elevated, of course. It was an awe inspiring experience to see Cs brain at work in real time. Lol, I couldn’t help think8ng of some of my more complex midi tracks and wav files.

    It felt so much better to be a part of a technological wonder than, say, witnessing someone getting chemotherapy. I thought of StarTrek’s Dr. McCoy tsking at the barbarism of 20th century medicine. Poison, cut, burn. But there we were, doing none of those, but being immersed in waves and light. These modalities will surely replace what is promoted now. Neuroscience is bursting. Light and sound are inevitabilities, IMO. The suspense is, can we avail these techniques now, or is it still too soon?

  • edited May 2022

    We've spoken about this in the past @LinearLineman but I'm pulling for you both. As you know, my mom was a long time sufferer of Parkinsons and Parkinsons-related Dementia until she passed last July. It was hard enough dealing with it from afar, nevermind on a day-to-day, moment-by-moment basis.

    This particular affliction is so tough because it's impossible to take things one step at a time since those steps end up being repeated so often. Having to re-explain the journey regularly - I know how that must feel. Talking to my mom was often like riding a bucking bronco with the conversation veering all over the place. Solidarity, my man.

    I've been quiet here as I've been fairly self-involved of late but I have been following your journey. Lots of hope and love for you both. I am interested to see how this progresses.

  • Very sorry to hear about what you are facing, @LinearLineman. Somehow I never heard of this earlier. My father has dementia, so I know how tough it must be for you. Wish you the best and hope that the experiment can give you a positive way forward. 👍

  • An article on brainwaves, and use of light/sound entrainment in treatment of Alzheimer's. I occasionally use a Kasina unit, if nothing else it can be extremely relaxing.

    https://www.nature.com/articles/d41586-018-02391-6

  • Thx @Daveypoo. Hope all is going well for you and your family. Thanks for the well wishes @Artj. Kim hoping if we get positive results, sufferers like your dad might be able to give this a try, too.

    Thanks @dougdi that is a fantastic article. I passed it on to the psychologist we’re working with on the device use. Light and sound. Apparently Dr. McCoy was right when he spoke of 20th century medical barbarity.

  • Wishing you and your wife the best Mike, hard roads for you both man…

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