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Dementia

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Comments

  • LinearLinemanLinearLineman

    @Paulieworld it was called “Turning your face to the wall”. It’s what animals do, too.
    Still, I do not understand a society that advocates a “humane” death for animals but a “non-humane” death for humans.

  • gravytopgravytop

    I read a really interesting piece about thIS caretaker LP a year or two ago, and I’ve always intended to listen to it. But the prospect is daunting and frightening, not only because of the length but because of how unsettling it is as a work.

    @egobeats said:
    Yall ever listen to the disturbing audio project about dementia?

    By: The caretaker
    album: Everywhere at the end of time

    https://en.wikipedia.org/wiki/Everywhere_at_the_End_of_Time

    It’s a really strange experience. I can’t listen to the entire thing- it really takes you to deep places, even if you’re only half paying attention. some cite it as jarring, too emotional, too tooo much- and I think I concur. I found it very sad, especially losing my mother to a brain tumor that left her with disphagya(sp)

  • boomerboomer

    Went through the same thing with my mother in law a couple of years ago. Her experience I think was more brutal than some described here. I also did a piece about it called “losing it”. I won’t hijack your thread with a link but I want to say your track nails what happened to her. One day my mother in law was an intelligent, educated, and engaging person. The next she was somebody else. The person I knew was just gone. You have indeed captured the ever shifting confusion and horror of what it must have been like for her. Listening to this, I just re-lived watching it happen. That was meant as a compliment and testament to your abilities, not to make you feel bad. You are a rare talent my friend. Are you enjoying the fall weather preview we are experiencing now?

  • boomerboomer

    @LinearLineman said:
    Hell.
    My wife chose to end her life in hospice by VSED. Voluntary Stopping Eating and Drinking. Legal in all 50 states and backed up by Supreme Court Ruling. Must be done with palliative care and while the patient is still competent.

    I arranged all this for her with great difficulty. The cognitive dissonance of doing such a thing for the one you love is excruciating, heart snd mind pummeling. It was over two years ago now. If she were alive today (which she would have been) every shred of dignity would be gone and others would look on her only with pity. She was brave and determined. She would not live like that.

    If you love someone with dementia they should know about this choice. Families that quake in revulsion at such a decision (if desired by the loved one) act out of a misguided idea of love and unrecognized selfishness.

    It is the right of an individual to make that choice. Forcing someone to live in inchoate darkness and confusion while the family feels self righteous and “loving” is nothing more than unwitting, unnecessary cruelty and cowardice.

    Sometimes there is only courage.

    i have always feared it happening to me. Hearing what your wife did about it was liberating and your courage inspiring. I think I may make that same choice if it comes to it. Thanks for sharing.

  • LoupsLoups

    @gravytop said:
    I read a really interesting piece about thIS caretaker LP a year or two ago, and I’ve always intended to listen to it. But the prospect is daunting and frightening, not only because of the length but because of how unsettling it is as a work.

    @egobeats said:
    Yall ever listen to the disturbing audio project about dementia?

    By: The caretaker
    album: Everywhere at the end of time

    https://en.wikipedia.org/wiki/Everywhere_at_the_End_of_Time

    It’s a really strange experience. I can’t listen to the entire thing- it really takes you to deep places, even if you’re only half paying attention. some cite it as jarring, too emotional, too tooo much- and I think I concur. I found it very sad, especially losing my mother to a brain tumor that left her with disphagya(sp)

    You could try An Empty Bliss Beyond This World first - still pretty harrowing but a gentler introduction to the concept, also shorter and more conventionally musical.

  • gravytopgravytop

    Thanks for the tip, will take a listen. Right after listening to OP‘s track.

    @Loups said:

    ****> > @gravytop said:

    I read a really interesting piece about thIS caretaker LP a year or two ago, and I’ve always intended to listen to it. But the prospect is daunting and frightening, not only because of the length but because of how unsettling it is as a work.

    @egobeats said:
    Yall ever listen to the disturbing audio project about dementia?

    By: The caretaker
    album: Everywhere at the end of time

    https://en.wikipedia.org/wiki/Everywhere_at_the_End_of_Time

    It’s a really strange experience. I can’t listen to the entire thing- it really takes you to deep places, even if you’re only half paying attention. some cite it as jarring, too emotional, too tooo much- and I think I concur. I found it very sad, especially losing my mother to a brain tumor that left her with disphagya(sp)

    You could try An Empty Bliss Beyond This World first - still pretty harrowing but a gentler introduction to the concept, also shorter and more conventionally musical.

  • PaulieworldPaulieworld

    @boomer said:
    Went through the same thing with my mother in law a couple of years ago. Her experience I think was more brutal than some described here. I also did a piece about it called “losing it”. I won’t hijack your thread with a link but I want to say your track nails what happened to her. One day my mother in law was an intelligent, educated, and engaging person. The next she was somebody else. The person I knew was just gone. You have indeed captured the ever shifting confusion and horror of what it must have been like for her. Listening to this, I just re-lived watching it happen. That was meant as a compliment and testament to your abilities, not to make you feel bad. You are a rare talent my friend. Are you enjoying the fall weather preview we are experiencing now?

    Please post it. I would love to hear it, and I'm sure others would, too. I very much appreciate the compliment. Especially coming from a member of the incomparable NIU Jazz Ensemble! If you have any tracks from Fly By Night, I would love to hear them, too. I lost my vinyl copy years ago. We slept with the window open last night. It was perfect. Have a great weekend.

  • boomerboomer

    Here’s my original post. https://forum.loopypro.com/discussion/52157/losing-it#latest

    The description in there is about personal setbacks and tragedies. My mother in laws rapid mental decline and everything it entailed was the tragedy.

    There used to be a couple of links to recordings of FBN but I can’t find them. I have my LP copy somewhere but no turntable anymore.

    Yes it’s great sleeping with the windows open. Enjoy your weekend as well.

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